Health and Me on MSN12h
These Are The Five Rare Diseases You Did Not Know Existed
It is always good to know about diseases so you can read the signs your body is telling you. However, there exists many ...
Chip Chick on MSN12d
Stone Man Syndrome Is A Rare Disease That Turns Muscles Into Bones
For patients with a rare genetic disorder that turns their muscles into bone, there is new hope. The disease is […] ...
Their flesh turns to bone, but a new treatment might help them
That is the predicament of patients with fibrodysplasia ossificans progressiva (FOP) or “Stone Man Syndrome”, a rare ...
Nature2y
Landmark study completed for ultra-rare bone-forming disease
Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disorder that turns soft tissue to bone. A recently completed multi-year study will finally provide doctors the information ...
‘I’m like a mannequin,’ says this rare disease patient
Also known colloquially as “Stone Man Syndrome”, FOP is a rare genetic disorder where, after birth and progressively through ...
The Scientist26d
How Orphan Drugs Became a Highly Profitable Industry
Along with Frederick Kaplan, an orthopedic surgeon and molecular geneticist at the university, Shore was focused on finding the cause of fibrodysplasia ossificans progressiva (FOP), an extremely ...
pharmaphorum8d
After FDA setback, Ipsen gets first OK for rare disease drug palovarotene
The regulator has cleared the oral selective retinoic-acid receptor gamma (RARγ) agonist for both chronic use and flare-ups in FOP, a genetic disorder in which tendons and ligaments gradually ...
Green Bay Press-Gazette25d
9-year-old Green Bay fan gets a trip of a lifetime to Brewers spring training
Nine-year-old Natasha Taylor, who lives with a rare bone disease, was gifted a trip to the Milwaukee Brewers spring training. Natasha was diagnosed with fibrodysplasia ossificans progressiva (FOP ...
WXIX-TV26d
Cincinnati FOP, firefighters union file complaints over city initiative
CINCINNATI (WXIX) - Cincinnati’s Fraternal Order of Police (FOP) and the Cincinnati Fire Fighters Union Local 48 have filed complaints against the city’s community responder initiative.
pharmaphorum2y
Ipsen's rare disease drug palovarotene knocked back in EU
Ipsen has suffered a setback in its marathon effort to bring palovarotene to market for ultra rare disease fibrodysplasia ossificans progressiva (FOP), after EU advisors recommended against approval.