The mystery for this 21-year-old patent was not that he had fibrodysplasia ossificans progressiva, but that he'd lived so ...

Disease name: Fibrodysplasia ossificans progressiva (FOP), also known as "stone man disease" or "Münchmeyer disease" Affected populations: FOP is an extremely rare disease that is estimated to ...

FOP often starts in early childhood ... in the tendons and ligaments Progressive osseous heteroplasia, another disease where bone forms outside the skeleton If you think your child has this ...

It's the latest twist in the turbulent tale of the ultra-rare disease therapy – developed to treat genetic disorder fibrodysplasia ossificans progressiva (FOP) – which has seen progress to the ...

Here’s how it works. Affected populations: FOP is an extremely rare disease that is estimated to affect around 1 in 1 million people. It does not affect one demographic more than others ...