It is always good to know about diseases so you can read the signs your body is telling you. However, there exists many ...
That is the predicament of patients with fibrodysplasia ossificans progressiva (FOP) or “Stone Man Syndrome”, a rare ...
For patients with a rare genetic disorder that turns their muscles into bone, there is new hope. The disease is […] ...
Early diagnosis is essential for a child with FOP, but this has rarely been easy. The symptoms can easily be mistaken for those of other diseases; FOP is ultra-rare, affecting only one in 1.4 ...
Previously, the only therapy available to patients with FOP was medicines to treat symptoms, including pain. Palovarotene was acquired by Ipsen as part of its $1 billion upfront acquisition of ...
At the moment, the only therapy available to patients with FOP – a disorder in which bony lesions are laid down in muscles, tendons, and ligaments – are drugs to treat symptoms including pain.